Please visit the below websites which have useful resources for researchers to incorporate PPI in their research.
INVOLVE is part of, and funded by, the National Institute for Health Research, to support active public involvement in NHS, public health and social care research.
They have produced an online resource which includes 10 briefing notes for researchers on how to involve members of the public in research.
Cancer Research UK: Research Involvement Toolkit for Researchers
A toolkit for researchers who want to involve patients and public in their research (at any stage). There are practical, step by step advice to plan, deliver and evaluate Public and Patient Involvement (PPI). This is to ensure that the activity adds value to the research work, is carried out to a high standard and a good use of resources, and that those involved have a good experience.
It is not designed to support researchers with engagement activities, or with recruiting to clinical trials.
It is designed to be easy to use and meet the researcher needs noted in researcher surveys conducted by CRUK and Shared Learning Group for Involvement in Research
This has been developed to be open access – a standard Username and Password has been created so that any researcher (or member of the public) can access the Toolkit. This is detailed on the above webpage.
The Toolkit will be reviewed and refined on an ongoing basis in order to respond to researcher needs and feedback.
CRUK can also advertise researchers’ involvement opportunities through its opportunities page.
The Clinical and Translational Radiotherapy Research Working Group is an NCRI working group set up to develop a portfolio of practice-changing trials in radiotherapy and radiobiology, ensure coordination across research and actively promote translation of new discoveries into practice.
CTRad consumer members are always willing to share their unique experience and expertise, so please contact them when you are beginning to design a trial. Other useful resources are also available on their website.
Independent Cancer Patients' Voice
Independent Cancer Patients' Voice is a patient advocate group, independent of established UK cancer charities. They involve patients in clinical research (including clinical trials, working with clinical/academic units, tissue banks etc) emphasising the patient perspective and helping to improve clinical research.
- Testimonials are available
Clinical Trials & Studies – gives an idea of some of the studies they have been involved with
Case histories are listed below from trials where PPI has been successfully incorporated: